Monday 12 March 2018

The reconstruction saga continues: Part 1

When is enough, enough? I kept asking myself that same question everyday. Breast reconstruction is never a perfect process and I’ve spoken openly about my surgeries in the past (here and here) because I know I’m not alone. I had high hopes going into my last surgery but found myself feeling deflated the moment I removed the bandages and saw the indents and extra skin that still remained. A feeling that I know many can relate to. My surgeon told me to wait a few months for the implants to settle into place, but we both knew I would need another surgery to get my breasts to where I could feel like myself again.

My affected right breast had surprisingly caused me little to no complications throughout the reconstruction process. It was the perfect size and shape and only had a minor dip where the lat flap and breast tissue didn’t sit flush. But it was my left non-affected side that caused the most pain – both physically and emotionally. Every time I looked in the mirror, I saw the loose skin hanging from the bottom of my breast and the indents and valleys. Trying on bras felt like a demoralizing process. My left breast wouldn’t fit into bras that fit on the right and I would leave the store empty handed and deflated. I wanted nothing more than to fast forward a few months to get this next surgery done hoping this time would be the last.

I kept myself busy over the next few months exercising to strengthen my body again and travelling to both NYC for the AnaOno x Cancerland fashion show and Orlando for the annual YSC Summit (blog post to come later). It felt great to leave my worries behind and connect with other women who knew exactly what I was going through. But once I returned home and the reality set in that my surgery was coming up in just 5 days, a feeling of dread began to pit its way into my stomach. The thought of being put under again and, even more disconcerting, the thought of waking up and being unhappy with the results again. I wanted nothing more than for this to be all over. 

As the day before surgery approached, I found myself going through the all too familiar motions: food prep, laundry, cleaning the house and packing my bag before I was holed up for another few weeks. The same feeling of sandpaper across my skin as I scrubbed every inch of my body the night and morning before surgery. The same green and blue hospital gowns and sterile smells. The flashbacks from every time I sat in this same room with my husband awaiting yet another surgery. From the lumpectomy after I was first diagnosed to the mastectomy I underwent after finding out my margins weren’t clear to the implant exchange to get rid of the rock hard expanders in my chest. We were both done.

When my name was called to go back into the surgical area, I found myself speaking first with the anesthesiologist to address any concerns with being put under. The one thing about going in for multiple surgeries is you get to know your body really well: how it responds to anesthetic, how it wakes up, what makes it angry. In past surgeries, I woke up in a state of panic, feeling restricted by the bandages and finding myself calling desperately to the nurse for an Ativan. Full disclosure here…I also suffer from mild claustrophobia so the thought of being restricted amplifies the panic attacks tenfold during times like these. I also get nauseous when I wake up so the anesthesiologist reassured me she would administer both some anti anxiety and anti nausea medication intravenously to avoid that happening.

My plastic surgeon then came in to discuss the procedure and began his extensive drawing on me once again. I would be undergoing fat grafting, a procedure that involves taking fat from one area of the body and grafting it onto another. Although I had a petite frame, he found the best option was to remove fat from my stomach which would then be used to fill in the gaps around my breasts. The loose skin around my left breast would also be removed, requiring a 3-inch incision along the lat flap scars on the underside and sternum side of my breast. As I got wheeled into the operating room and the IV started in my vein, I looked around and thought to myself I hope I never have to see this room again. 

As the anesthetic wore off and my senses slowly awakened, I began to feel the pain and discomfort in my breasts where the surgeon had made his incisions. I couldn’t feel any pain in my stomach though and panicked for a second wondering if my plastic surgeon had in fact done the fat grafting. But the lack of feeling and numbness in that area quickly reassured me and I drifted off into sleep again. 

After a couple of hours in recovery, I was finally feeling well enough to go home. My husband Josh came in with my chariot (wheelchair) but first helped me get changed out of my hospital attire and into my regular clothes. I had packed items that were easy to get on including this oversized Amoena Valetta camisole top with built in shelf bra which fit perfectly over my bandages as well as a pair of loose fitting yoga pants and flip flops. Once back at the car, I wrapped a blanket gently across my lap to protect my stomach from the seatbelt chaffing and a ParkPuff to cushion against my chest.

I had been sent home with antibiotics and medication to help take the edge off from the pain but I could feel it start to creep up again as it wore off. My left breast ached where the plastic surgeon had made his incision and the hot flashes were starting to flare up in my body again like clockwork. All I wanted to do was to nestle myself in bed but sleeping can be a bit tricky too. I always find myself worried about squishing my breasts and having the incisions open up. So, out came the pillow fort again, two pillows behind my back and one on either side of me to hold my arms up and provide a cushion against my breasts. 


As I woke the next day, the pain in my breast felt like it had subsided but the nerves around where the fat was taken had clearly woken up. My stomach was extended and swollen and I felt pain and tenderness with every movement. The last thing I wanted to do was go in for my Zoladex injection but it had already been put off because of surgery so that the micro tablet didn’t get in the way of the fat grafting. I wondered though how I was going to handle a subcutaneous injection in my stomach when it hurt to even put on pants! But if I could make it through everything I’d been through thus far, then surely, I could get through this too. My gp oncologist froze the area with a topical spray and quickly gave me the injection so I could get back home and rest. 

And rest I did. I watched more Netflix than I thought possible and stayed in bed for over 12 hours, waking only long enough to take my pills and crawl back under the covers again. Two days had passed since surgery and I knew that once I finally found the energy to get out of bed, it was time to face my fears and take off the bandages. I could feel myself holding my breath as I unraveled the bandages, the fear of disappointment and heartache setting in once again. But as the last of the bandages came off, I found myself letting out a huge sigh of relief. While my breasts were not perfect by any means, the extra skin was gone this time and the indents had been filled out. I finally said to myself what I had been waiting for for almost 2 years. I am done.

I’m now one week post op and continue to live in my yoga pants (while the swelling keeps going down in my abdomen) and my super cozy AnaOno compression bra (which I have to wear until I see my plastic surgeon in two weeks). My stomach still feels tender to touch and the bruising is starting to come out leaving me with a painted yellow hue but the pain meds have become less frequent. And I finally got out walking again which is a huge plus. But what has been most rewarding is finally coming to a place where I feel comfortable in my own skin again and accepting that I am perfectly imperfect.

Sunday 4 March 2018

What to Pack for Day Surgery


Getting all packed up and ready to go for my fourth surgery first thing tomorrow morning. I’ll be undergoing breast revisions including fat grafting and removing excess skin with the hopes that this will be my last surgery. Although I am supposed to be in and out of the hospital within the same day, there are a few things I like to pack with me to not only keep me occupied but just in case my stay ends up being a bit longer than anticipated too. Here’s a list of items that I will be bringing with me for day surgery tomorrow:


1. Book/Magazine/Journal


As many of you know, there can be a lot of time spent waiting before going in for surgery. I always bring a book to help pass the time and to also distract myself a bit from the nerves and butterflies fluttering in my stomach as I wait for my name to be called. Lately, I’ve been reading The Subtle Art of Not Giving a F*ck which is a hilarious and thought provoking take on the things we value most in life and what it is that’s worth pursuing.


2. Cellphone, headphones & portable phone charger


Just as a book or magazine can be a good distraction, having your cellphone to listen to some music or just scroll through Facebook or Instagram can be a good way to get your mind off things as you wait. Remember to bring your portable charger though just in case you spend a little more time than anticipated waiting to get called in.


3. Medications


Even though I’m scheduled for day surgery and should be in and out of the hospital within the same day, I like to pack any medication I’m on on just in case things don’t go as planned. I normally take my Exemestane in the morning but will need to take it later in the day since I’ll be off food and water for a few hours pre-surgery.


4. Travel wipes and moisturizing products


Surgical iodine is often used to prep the skin before surgery to eliminate any bacteria but it stains your skin leaving you with a pinky/reddish residue. I pack these all natural Caboo bamboo travel wipes with me everywhere I go which work great to clean the iodine off. Eye drops and lip balm are also a staple in my day bag too so I can moisturize my eyes and lips post surgery and feel refreshed.


5. Mini fan


There’s something about surgeries that gets the hot flashes raging and feeling like a volcano is erupting inside my body. My best friend brought me a mini fan after my mastectomy and latissimus dorsi flap reconstruction surgery in June and it was the best thing ever to cool me off post surgery. They are cheap too and can usually be found at your local dollar store or any one of the big box stores.


6. Comfortable clothing


Getting into clothes after surgery can be extremely difficult between the pain and limited range of motion. I always opt for a top that either buttons or zips up or one that I can easily slide on. This Valletta tank top by Amoena is both soft and stretchy and has a built-in bra liner to give a little added support. For bottoms, I choose something that is loose fitting and easy to pull on like yoga or pajama pants. Slip on shoes are also recommended or a pair of hard soled slippers.

7. AnaOno compression bra:
AnaOno pocketed front closure bra

I’ve heard so much about the AnaOno bras and was excited to finally purchase this one through Gorgeous You, a company in Canada that carries mastectomy bras, swimwear and lingerie. This bra clips in the front and has 4 different settings allowing you to tighten or loosen it up to whatever feels most comfortable post surgery.


8. ParkPuff seatbelt pillow

SurvivorModa ParkPuff in Betty Bouquet


A few months ago, I won this amazing ParkPuff from SurvivorModa during the Cancer Grad breast cancer awareness month giveaway and I’ve been using it ever since. It folds and closes over the seatbelt strap in your car and provides cushioning on either side of your chest so you don’t have to worry about the seatbelt pressing into your chest and causing any discomfort post surgery.


9. Snacks!


If you’re like me, you will be absolutely starving post surgery! I’m an all time snacker and lover of food so having to refrain from eating anything after midnight is a challenge. I like to bring a simple and easy snack such as an apple, one of my homemade carrot muffins (recipe coming soon) or a granola bar (I love these honey oat ones from Kind) to get a little something in my belly post surgery and ward off the hunger pangs until I get back home.

Is there anything missing from this list that you would recommend packing for day surgery? I’d love to hear your suggestions below!